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晴天霹雳,妈妈肺癌晚期,离开FREEOZ,离开澳洲

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1#
发表于 26-5-2015 00:31:24 | 只看该作者 回帖奖励 |倒序浏览 |阅读模式

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本帖最后由 悉尼宝宝龙 于 26-5-2015 00:51 编辑

年初老妈体检的时候查出CEA指标超标,之前几个月一直在做各种检查,都没有找出问题根源。但指标持续升高绝不可能没有问题,最后只能上PET-CT——一种带放射性的全身扫描。周五做完晚上收到爸爸消息,是肺部恶性肿瘤。我还不是很清楚到底有多严重,因为医学报告我们也不是很看得懂,所以一直希望是很早期,恶性肿瘤早期的治愈率和成活率说不定还是可以的。因为毕竟发现异常才没多久,尺寸很小,而且查了各种各样的项目都正常。

但是今天父母见完医生,向我传达的信息让我彻底失去了希望。不治疗6个月!只有6个月!!!有积液,开刀已经没意义了,只能化疗,也可能化疗顺利的话还是有几年时间的,但是结果会是怎么样很难说,要看个体……

现在思路很乱,新家正在装修,原本买好大豪斯,还把楼下装修成适合爸妈居住的样子,希望他们能多来看看,配外孙玩玩享受天伦之乐,现在新房妈妈很可能都看不到了。装修进行到一半,一大摊事情只能先扔给LG了。我要尽快打包买机票回国了,LG收拾完装修,搬完家也尽快回国,我们需要人手,家里还有不到2岁的儿子要照顾。我们这一走也不知道什么时候才能回澳洲,走之前还有巨多的事情要搞定,千头万绪……我要疯了……事情全部都赶一块儿了……

暂别FreeOZ, 暂别澳洲了,不知道该说什么…………

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floatstone + 50 安慰MM!
choz + 50 为楼主妈妈祈福!
webster + 50 安慰一下
bfy2012 + 50 祝一切有好转!
eurekana + 50 安慰一下

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2#
发表于 26-5-2015 00:53:41 | 只看该作者
先别一头往坏处想,肺部恶性肿瘤也分很多类型的,有些类型治疗效果好一些,有些就会差一些,所以下一步,应该先取活检验明到底是哪个类型才能下结论。而且现在对付肺癌的有一些新的办法,他们和化疗联合或者序贯来用的话,的确有些病人可以实现带瘤生存而延长生存期的。你现在的处境我很理解,是你人生的一道坎,但希望你首先自己能勇敢起来去面对它跨过它,Be strong, Look after yourself, Look after your mother!

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3#
 楼主| 发表于 26-5-2015 02:52:50 | 只看该作者
Ssrsmdyt002 发表于 26-5-2015 01:50
人的命天注定,愿神祝福你,阿们!!!

额……你是来搞笑的么?
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4#
发表于 26-5-2015 02:56:35 | 只看该作者
这种时候,必须冷静,理性地去处理事情

用本子写下需要安排的事情,调整心情,别让妈妈担心你。

带着宝宝回国,妈妈心情好,对治疗很有帮助的。

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5#
 楼主| 发表于 26-5-2015 02:57:04 | 只看该作者
stdr 发表于 26-5-2015 00:53
先别一头往坏处想,肺部恶性肿瘤也分很多类型的,有些类型治疗效果好一些,有些就会差一些,所以下一步,应 ...

谢谢鼓励!

其实我人生已经跨过很多坎了,但是都是我自己的坎啊,我不怕坎啊!一直以为我们家应该是我先爆发的,早就做好心理准备了,谁知道居然是至今一次手术都没做过的老妈。我还没有做好这样的准备,我不怕死,但我怕我妈先撑不住啊!
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6#
发表于 26-5-2015 04:51:41 | 只看该作者
提示: 作者被禁止或删除, 无法发言
用一个事例安慰一下吧。我有个同学在四五年前肺癌,她看了30多个医生,拍了两次PETCT,其它的就不谈了,因为说肺上都是肿瘤,只没做过活检,因为开刀也没办法了。我当时查了一下肺癌,也帮她问了医生,记得肺癌是存活率很低的一种癌症,就是开刀,大概最多也就半年时间。
虽然只是朋友,还不是家人,我当时知道她得肺癌的情况还是很难受,忍不住流眼泪。。。
不过幸运的是,她现在还挺好的,外表也看不出来。希望能帮助你一些信心。

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7#
发表于 26-5-2015 05:56:30 | 只看该作者
唉,父母老了身体不好,下个月复查,希望不是坏消息,我现在也在忙乎辞职卖家当打包行李

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8#
发表于 26-5-2015 06:00:46 | 只看该作者
all the best

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9#
发表于 26-5-2015 08:13:58 | 只看该作者
每个人已经或迟早都会面对的现实问题,一定坚强。

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10#
发表于 26-5-2015 08:30:50 | 只看该作者
瞎提一个思路,接妈妈来,如果还能坐飞机的话。如果治疗太晚,主要就是少吃苦了。

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11#
发表于 26-5-2015 08:51:25 | 只看该作者
我爸爸比你妈妈早一年
去年也是5月份
我爸爸肝癌晚期住院
我当时也是马上赶回去
所以我很理解你现在的心情
能化疗就化疗吧
我爸爸当时身体太差
不能做手术不能化疗
后来还是离开了
带孩子回去陪你妈妈我觉得应该是好的
老人都喜欢看到小孩
这样心情会比较好
还有如果你们可以做到的话
最好在你妈妈面前不要伤心难过
这样会影响她的病情
尽可能地安慰她迁就她照顾她
病人的心情有时候会不好
尽量顺着她
我就没有在我爸爸面前掉过一滴泪
再艰难都会走过来的
希望你妈妈早日康复

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12#
发表于 26-5-2015 09:26:08 | 只看该作者
找个好医生,西医不行,看看中医。
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13#
发表于 26-5-2015 09:29:15 | 只看该作者
要不要再找另外一个医生看一下确认?

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14#
发表于 26-5-2015 09:36:24 | 只看该作者
如果确诊,我的建议是减轻痛苦第一位,积极享受剩下的短暂时光是第二位,把钱基本搞光把人彻底搞伤真的没啥意思,结局其实已经确定了,如何走向这个结局才是目前关键的。知道这种观点可能难以理解,不过真的看到太多试图去对抗晚期癌症结果搞得全家都不痛快的结局,特别最后不少还怪到医生头上,说庸医白衣狼等等,花了这么多钱什么都没得到,闹医院一定要赔偿云云。

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15#
发表于 26-5-2015 09:53:12 | 只看该作者
retirement 发表于 26-5-2015 09:36
如果确诊,我的建议是减轻痛苦第一位,积极享受剩下的短暂时光是第二位,把钱基本搞光把人彻底搞伤真的没啥 ...

确实,这个挺难。我家也是这事,病痛的压力来时,坚强的人也会撑不住,虚弱的身体意志就更难了。那种时候,毒药能减轻痛苦也会毫不犹豫的去吃。求生的意志,或者说是求生的侥幸,会蒙蔽一个人的眼睛。我岳父当时在稳定期,经不起医生几句话,采用新的化疗药,现在看来其实是加重了痛苦。

也可以理解,如果说不用药最多两年,用药可能会好,我想大多数人都会先择后者,搏一下。往深里想,就会觉得医生骗人,拿你试药,而且新型的化疗药一般很贵,一针1-2万。打十二针,这药如果有效,家里人还能接受。无效,或者病痛越来越厉害,家里人就受不了了。生病的人是不会心疼钱了,活人还要生活呢。

不是自己生病,真的不好说。想法会变,行动也会变。我自己说,如果是我,我得一个人跑远点,这种时候人多未必就好。互相看着,反而压力大,想法也会多起来。

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16#
发表于 26-5-2015 10:05:33 | 只看该作者
all the best
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17#
发表于 26-5-2015 10:49:05 | 只看该作者
mason00 发表于 26-5-2015 09:53
确实,这个挺难。我家也是这事,病痛的压力来时,坚强的人也会撑不住,虚弱的身体意志就更难了。那种时候 ...

所以现在对于晚期癌症,强调的是无痛治疗,而不是对癌症本身的治疗,着眼点就是提高患者体感舒适度和生活满意度,尽量在最后一段时光里不去承受过多痛苦。国内最大的问题在于,医生无论自己想还是不得不,都肯定会推荐进口药,而患者家属子女又往往是无论以前关系好不好孝不孝到了这会儿貌似面子比天大,一定不能让人背后戳脊梁骨说不舍得出钱看病,哪怕说明了只有万分之一的可能且只是多延长几个月寿命也恨不得砸锅卖铁也要治,可一旦出了钱,就把那万分之一当作百分之百不管别人好没好我出了钱没好那就不对,和出去花钱买东西动不动就自己把自己当上帝对商家趾高气昂横挑鼻子竖挑眼鸡蛋里头挑骨那一套拿出来,从骂街到医闹,媒体曝光微博微信广而告之等等手段不一而足,医生护士立马变成世仇欲杀之而后快。。。。。。。。。。。。
看得太多了,无力改变什么,所以不再对这行有任何兴趣,唯一好的是自己看得开,万一万一落到自己身上,早有心理准备就是了。
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18#
发表于 26-5-2015 11:21:20 | 只看该作者
我看到你的贴,心都疼了。20年前我的父亲就是肺癌去世的。当时的情景依然历历在目,心情不堪回首。心痛啊。我很能理解你现在的感受。快回去尽一份孝心吧,不要留有遗憾。Be strong,Look after youself,Look after your mother.Be strong !  Be strong !
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19#
 楼主| 发表于 26-5-2015 12:14:34 | 只看该作者
daxiao 发表于 26-5-2015 05:56
唉,父母老了身体不好,下个月复查,希望不是坏消息,我现在也在忙乎辞职卖家当打包行李。

握手了,抱抱。
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20#
 楼主| 发表于 26-5-2015 12:16:02 | 只看该作者
cynthiawu 发表于 26-5-2015 02:56
这种时候,必须冷静,理性地去处理事情

用本子写下需要安排的事情,调整心情,别让妈妈担心你。

已经寄了好几张纸了,实在很乱,我原本是orgenise癖………………
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21#
 楼主| 发表于 26-5-2015 12:18:19 | 只看该作者
mason00 发表于 26-5-2015 08:30
瞎提一个思路,接妈妈来,如果还能坐飞机的话。如果治疗太晚,主要就是少吃苦了。

不治疗6个月,治疗肯定比不治疗好,希望还是有的,哪怕是一丝希望也要争取。
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22#
 楼主| 发表于 26-5-2015 12:30:09 | 只看该作者
retirement 发表于 26-5-2015 10:49
所以现在对于晚期癌症,强调的是无痛治疗,而不是对癌症本身的治疗,着眼点就是提高患者体感舒适度和生活 ...

你YY能力也太强了吧,能不要来这个贴歪楼么?
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23#
发表于 26-5-2015 13:47:26 | 只看该作者
悉尼宝宝龙 发表于 26-5-2015 02:57
谢谢鼓励!

其实我人生已经跨过很多坎了,但是都是我自己的坎啊,我不怕坎啊!一直以为我们家应该是我 ...

你一直很坚强乐观,相信你一定能战胜这个生活的难题。非常同意“哪怕是一丝希望也要争取”。
我姑父在某症晚期,医生和家人宣布放弃回家等那一天后,他一直装作不知道自己的病,家人也一直努力地“瞒”着。5年过去了,他现在已经康复了。另外国内的一个朋友的母亲,也是在某晚期,据说转移到了淋巴。手术后坚持治疗,目前完全控制住了。而另一个信基督的老年朋友,选择不治疗平静离去,她的孩子一说起来就无比遗憾。我相信积极争取就会有希望,没有遗憾。
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24#
发表于 27-5-2015 02:43:41 来自手机 | 只看该作者
悉尼宝宝龙 发表于 26-5-2015 12:18
不治疗6个月,治疗肯定比不治疗好,希望还是有的,哪怕是一丝希望也要争取。

楼主要坚强,  人生喜怒哀乐滋味各有不同,  像这样自己无法掌控结局的事情非常心痛。
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25#
发表于 27-5-2015 05:53:37 | 只看该作者
20多年前,我的父亲也是体检时查出同样的疾病,在后来的6个月中,我每天陪他说话,并用卡带录音机录制了谈话的所有内容,鼓励和安慰是对病中长辈的最大帮助,记得留下录音,妈妈的声音将会一直留给你温暖!

减轻病痛非常重要,让妈妈心情愉快也很重要!如果经济许可,是不是可以考虑让妈妈来澳洲治疗?新鲜的空气对肺癌病人很重要,相信奇迹!

做一个坚强的女儿,在后面的日子里自己也要注意休息,保证自己身体健康,才有可能坚持下去!

祝福妈妈能战胜病痛,争取康复!
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26#
发表于 27-5-2015 06:16:38 | 只看该作者
严重安慰
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27#
发表于 27-5-2015 08:18:30 来自手机 | 只看该作者
争取不是那么容易的选择。手术和化疗对身体都是极大的负担,有效是需要争取。难在经历了痛苦后,机会仍然很低,甚至只是一个假设。这就不好说一定要去争取了。看具体情况,也是个人自己的选择。我岳父的后期治疗,基本是加重痛苦,缩短剩下的时间。你也不好说医生是抓个机会卖药,赚钱。旁边很多亲戚也不敢劝,病人自己很容易发火以为你们不愿意花钱救他。不说了,生病这种事做好心理准备吧,很考验人性。不是显得人有多高尚,而是能有多强的抗打击能力。

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28#
发表于 27-5-2015 10:32:00 | 只看该作者
Why Medicine Won’t Allow Cancer to Be Cured

By Dr. Mercola

Imagine a commercial plane crashed and there were some fatalities involved. You can be sure that would make the headline of every major newspaper. Well, we have the equivalent of 8-10 planes crashing EVERY DAY with everyone on board dying from cancer.

Nearly two million Americans are diagnosed with cancer every year—one person out of three will be hit with a cancer diagnosis at some time in their lives, in spite of the massive technological advances over the past half-century.

Western medicine is no closer to finding a "cancer cure," while cancer has grown into a worldwide epidemic of staggering proportions. The statistics speak for themselves:

In the early 1900s, one in 20 people developed cancer
In the 1940s, one in 16 people developed cancer
In the 1970s, it was one in 10
Today, it's one in three!
According to the CDC, about 1,660,290 (1.66 million) new cancer cases are expected to be diagnosed in 20131. If overall death rates are falling, why are incidence rates still on the rise? The answer is simple: the 40-year "war on cancer" has been a farce.

The cancer epidemic is a dream for Big Pharma, and their campaigns to silence cancer cures have been fierce, which is a tale well told in the documentary film featured above, Cancer: Forbidden Cures.

The Cancer Machine

Please understand that cancer is big business. The cancer industry is spending virtually nothing of its multi-billion dollar resources on effective prevention strategies, such as dietary guidelines, exercise and obesity education. Instead, it pours its money into treating cancer, not preventing or curing it.

Why would they shoot their cash cow? If they can keep the well-oiled Cancer Machine running, they will continue to make massive profits on chemotherapy drugs, radiotherapy, diagnostic procedures and surgeries.

The typical cancer patient spends $50,000 fighting the disease. Chemotherapy drugs are among the most expensive of all treatments, many ranging from $3,000 to $7,000 for a one-month supply.

If the cancer industry allows a cure, then their patient base goes away. It makes more sense to keep a steady stream of cancer patients alive, but sick and coming back for more. How did this societal monster come about?

The featured documentary is enormously informative. It details how the pharmaceutical industry partnered with the American Medical Association (AMA) in an ingenious plan to overtake the medical system in four swift, easy steps, back in the early 1900s. In a nutshell, it went something like this:

International bankers that own the drug and chemical companies gained control over the medical education system over 100 years ago.
They gave grants to the AMA and leading medical schools in exchange for seats on their board and the ability to control policy.
Finally, they cleverly engineered their control of virtually every federal regulatory agency relating to the practice of medicine.
'Don't You DARE Cure Anyone!'

In spite of the enormous amounts of money funneled into cancer research today, two out of three cancer patients will be dead within five years after receiving all or part of the standard cancer treatment trinity—surgery, radiotherapy and chemotherapy. This is not too surprising when you consider that two of the three are carcinogenic themselves! One study estimated that chemotherapy benefits about one of every 20 people receiving it.

Over the last hundred years, a number of natural cancer treatments have been developed and used successfully to treat patients in the US and other countries. All have been vehemently discounted, silenced, and pushed under the rug by the medical monopoly, with physicians and researchers attacked, smeared, sent to prison, and professionally ruined for daring to defy the medical establishment.

To this day, with respect to credibility in medicine, "quack" is synonymous with "competition."

In order to protect the medical monopoly, any viable natural treatment is met with massive opposition by the pharmaceutical and medical industries. Drug companies have no interest in natural agents that they cannot patent, because they interfere with their revenue stream. They will go—and have gone—to extreme measures to prevent the truth about effective natural treatments (competitive threats) from reaching the public.

The FDA is now, thanks to PDUFA, primarily funded by the drug companies and is complicit in this process. They restrict competition in the guise of protecting the public, when the reality is they are protecting the profits of the drug companies.

My Top 12 Cancer Prevention Strategies

There is so much you can do to lower your risk for cancer. But please don't wait until you get the diagnosis—you have to take preventative steps NOW. It's much easier to prevent cancer than to treat it, once it takes hold. I believe you can virtually eliminate your risk of cancer and chronic disease, and radically improve your chances of recovering from cancer if you currently have it, by following these relatively simple strategies.

Food Preparation: Eat at least one-third of your food raw. Avoid frying or charbroiling; boil, poach or steam your foods instead. Consider adding cancer-fighting whole foods, herbs, spices and supplements to your diet, such as broccoli, curcumin and resveratrol. To learn more about how these anti-angiogenetic foods fight cancer, please see our previous article: "Dramatically Effective New Natural Way to Starve Cancer and Obesity."
Carbohydrates and Sugar: Reduce or eliminate processed foods, sugar/fructose and grain-based foods from your diet. This applies to whole unprocessed organic grains as well, as they tend to rapidly break down and drive up your insulin level. The evidence is quite clear that if you want to avoid cancer, or you currently have cancer, you absolutely MUST avoid all forms of sugar, especially fructose, which feeds cancer cells and promotes their growth. Make sure your total fructose intake is around 25 grams daily, including fruit.
Protein and Fat: Consider reducing your protein levels to one gram per kilogram of lean body weight. It would be unusual for most adults to need more than 100 grams of protein and most likely close to half of that amount. Replace excess protein with high-quality fats, such as organic eggs from pastured hens, high-quality meats, avocados, and coconut oil.
GMOs: Avoid genetically engineered foods as they are typically treated with herbicides such as Roundup (glyphosate), and likely to be carcinogenic. A French research team that has extensively studied Roundup concluded it's toxic to human cells, and likely carcinogenic to humans. Choose fresh, organic, preferably locally grown foods.
Animal-Based Omega-3 fats: Normalize your ratio of omega-3 to omega-6 fats by taking a high-quality krill oil and reducing your intake of processed vegetable oils.
Natural Probiotics: Optimizing your gut flora will reduce inflammation and strengthen your immune response. Researchers have found a microbe-dependent mechanism through which some cancers mount an inflammatory response that fuels their development and growth. They suggest that inhibiting inflammatory cytokines might slow cancer progression and improve the response to chemotherapy.
Adding naturally fermented food to your daily diet is an easy way to prevent cancer or speed recovery. You can always add a high-quality probiotic supplement as well, but naturally fermented foods are the best.

Exercise: Exercise lowers insulin levels, which creates a low sugar environment that discourages the growth and spread of cancer cells. In a three-month study, exercise was found to alter immune cells into a more potent disease-fighting form in cancer survivors who had just completed chemotherapy.
Researchers and cancer organizations increasingly recommend making regular exercise a priority in order to reduce your risk of cancer, and help improve cancer outcomes. Research has also found evidence suggesting exercise can help trigger apoptosis (programmed cell death) in cancer cells. Ideally, your exercise program should include balance, strength, flexibility, high intensity interval training (HIIT). For help getting started, refer to my Peak Fitness Program.

Vitamin D: There is scientific evidence you can decrease your risk of cancer by more than half simply by optimizing your vitamin D levels with appropriate sun exposure. Your serum level should hold steady at 50-70 ng/ml, but if you are being treated for cancer, it should be closer to 80-90 ng/ml for optimal benefit.
If you take oral vitamin D and have cancer, it would be very prudent to monitor your vitamin D blood levels regularly, as well as supplementing your vitamin K2, as K2 deficiency is actually what produces the symptoms of vitamin D toxicity. To learn more, please see my previous article: "What You Need to Know About Vitamin K2, D and Calcium".

Sleep: Make sure you are getting enough restorative sleep. Poor sleep can interfere with your melatonin production, which is associated with an increased risk of insulin resistance and weight gain, both of which contribute to cancer's virility.
Exposure to Toxins: Reduce your exposure to environmental toxins like pesticides, herbicides, household chemical cleaners, synthetic air fresheners and toxic cosmetics.
Exposure to Radiation: Limit your exposure and protect yourself from radiation produced by cell phones, towers, base stations, and Wi-Fi stations, as well as minimizing your exposure from radiation-based medical scans, including dental x-rays, CT scans, and mammograms.
Stress Management: Stress from all causes is a major contributor to disease. Even the CDC states that 85 percent of disease is driven by emotional factors. It is likely that stress and unresolved emotional issues may be more important than the physical ones, so make sure this is addressed. My favorite tool for resolving emotional challenges is Emotional Freedom Techniques (EFT).
What to Do If You Already Have Cancer

Without a doubt the most powerful essential strategy I know of to treat cancer is to starve the cells by depriving them of their food source. Unlike your body cells, which can burn carbs or fat for fuel, cancer cells have lost that metabolic flexibility. Dr. Otto Warburg was actually given a Nobel Prize over 75 years ago for figuring this out but virtually no oncologist actually uses this information.

You can review my recent interview with Dr. D'Agostino below for more details but integrating a ketogenic diet with hyperbaric oxygen therapy which is deadly to cancer cells debilitated by starving them of their fuel source would be the strategy I would recommend to my family if they were diagnosed with cancer.
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发表于 27-5-2015 10:34:19 | 只看该作者
Most people who are fighting their cancer have little idea about what they are dealing with or whom they are dealing with.
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发表于 27-5-2015 13:43:53 | 只看该作者
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本帖最后由 fuzzylogic115 于 27-5-2015 13:47 编辑

子欲养而亲不待,这事并不鲜见。人生而有终时,能说的就是在有限的时间里,好好陪陪老人家人。

不过有时候事情来了,未必有那么绝望。

现代科学认为是绝对,必死,必然错误的东西还少吗?最后脱出其掌控的而继续存在的比比皆是。

我也是机缘巧合,跳入了一个为现代科学所不认可,但却确确实实造福亲人朋友的领域。

中医看癌症并非西医那么具体。癌症就是肿瘤本身吗?不是的。它是综合性疾病,一个健康的人发生癌的几率基本是不存在的(这里健康是从中医角度来看,并非是西医的生化指标)。发生癌症的必然条件是身体正气虚弱,所以如果能让妈妈通过中医调理,自身锻炼,保持心情,加上你的呵护,提升自身正气,癌症极有可能得到控制甚至不治自愈。但前提是必须放弃化疗。

有很多类似的案例和病案显示,西医所谓的xx晚期几个月寿命,如果进行化疗,是绝对不会有那么长的。因为化疗的本质就是在进一步打击你的抵抗能力,也就是正气。正气一虚,癌细胞虽有可能伴随化疗而死去,留下的部分再生的可能则更大。如果不进行化疗,而进行保守治疗中药调理,那么即便最后不能治愈,也能极大延长生存时间和生存质量。


我自己即为中医的受益者。我因母亲生病而学医,到现在家人因而受益。很多西医诊断为不可治愈的疾病,已经随着中药调理基本痊愈。包括母亲之前诊断的肺动脉高压,说是5年寿命。之后经中药治愈。冠心病好几次差点就撒手而去,也经过汤药治疗基本痊愈,目前正在治疗便秘,很顽固,不容易彻底根治。所以给你点我对中医的理解和经验,希望能帮你打开一扇窗,从中看到希望。

总有些奇迹需要人们去创造,但这些人注定不会走寻常路。

上帝对你关闭了一扇门的同时,可能已经打开了另一扇窗。希望能帮到你。

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